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The Worldwide Lyme Disease protest will take place in 21 different countries on 16th and 18th May 2014. Australia is part of this worldwide protest. If you would like to be involved please add your name to the face-book site: or for Sydney: https://www.facebook.com/groups/SydneyWWLP/ and https://www.facebook.com/groups/GreaterWesternSydneyLymeSupportGroup/events/ and for the rest of Australia visit  https://www.facebook.com/WorldwideLymeProtestAustralia 

Friday, 15 March 2013

Virginia governor signs Lyme bill


The groundbreaking law requires patients to be notified that a negative Lyme test doesn't necessarily mean they don't have Lyme disease.
Bob McDonnellVirginia Governor Bob McDonnell today signed into a law the Lyme Disease Testing Information Disclosure Act. Under the new legislation, patients being tested for Lyme disease must be officially informed that a negative test result does not mean they don’t have Lyme disease.
House Bill 1933, sponsored by Delegate Barbara Comstock and others, requires the following notification to be given to anyone being tested for Lyme disease.
YOUR PHYSICIAN HAS ORDERED A LABORATORY TEST FOR THE PRESENCE OF LYME DISEASE FOR YOU. 

CURRENT LABORATORY TESTING FOR LYME DISEASE CAN BE PROBLEMATIC AND STANDARD LAB TESTS OFTEN RESULT IN FALSE NEGATIVE AND FALSE POSITIVE RESULTS, AND IF DONE TOO EARLY, YOU MANY NOT HAVE PRODUCED ENOUGH ANTIBODIES TO BE CONSIDERED POSITIVE BECAUSE YOUR IMMUNE RESPONSE REQUIRES TIME TO DEVELOP ANTIBODIES. 

IF YOU ARE TESTED FOR LYME DISEASE, AND THE RESULTS ARE NEGATIVE, THIS DOES NOT NECESSARILY MEAN YOU DO NOT HAVE LYME DISEASE. IF YOU CONTINUE TO EXPERIENCE UNEXPLAINED SYMPTOMS, YOU SHOULD BE RETESTED PERIODICALLY AND YOU SHOULD CONTACT YOUR PHYSICIAN IF YOU HAVE ANY QUESTIONS OR CONCERNS.

Comstock worked with members of the National Capital Lyme and Tick-Borne Disease Association to garner support for the measure. On one occasion, more than 100 supporters—many of them Lyme patients who had initially tested negative for disease—filled a hearing room in the House of Delegates. On the day of the final House vote, several legislators themselves spoke movingly of a personal connection to Lyme disease. Especially poignant were remarks from Delegate James Edmunds, who said that he believes his father died from undiagnosed Lyme disease, after a negative Lyme test.
Comstock said inaccurate test results often lead to Lyme patients going undiagnosed and untreated for months or even years. “I’m pleased that we were able to pass this bill which focuses on getting information about testing problems directly to patients so they can seek additional testing, if necessary, as well as appropriate treatment.”
The Medical Society of Virginia, which opposed the bill, had been lobbying for Governor McDonnell to veto the measure, saying that it interfered with the physician-patient relationship.
Related posts:
  1. NEWS: Lyme disease bill advances in Virginia Legislature
  2. NEWS: Virginia passes bill requiring doctors to disclose that Lyme tests can be faulty
  3. NEWS: Video of floor vote on Virginia Lyme bill
  4. NEWS: Massachusetts governor signs Lyme doctor protection law
  5. NEWS: New Hampshire bill to protect Lyme docs goes to governor

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Monday, 28 January 2013

Worldwide Lyme Disease Awareness Protest



Worldwide Lyme Disease Awareness Protest

Over twenty countries and several states all to protest on

May 10th & 11th, 2013


* Lyme patients from all over the world feel they are being ignored and even being denied treatment for tick borne illnesses such as Lyme Disease, Babesia, Erlichisois, Ricksettia and Bartonella.

* Demands are being made for accurate testing, proper treatments, and admittance that Chronic Lyme Disease is real, serious and potentially fatal.

* Patients want to know why the IDSA is being used by the CDC for their guidelines in the treatment of Lyme Disease even after investigation found them biased and the guidelines flawed.

* Lyme patients are asking that the healthcare community need to be better educated in order to effectively diagnose and treat patients with Chronic Lyme Disease.

* Lyme patients are stating that independent funding for medical research into Lyme Disease testing and treatment are needed.

* Several states and over twenty countries will be protesting including: Germany, Austria, Canada, UK, Switzerland, France, US, Poland, Denmark, Norway, Australia, Iceland, Finland, The Netherlands, Ireland, Sweden, South Africa, Spain, Romania and the Faroe Islands.

* There will be protests, rallies, letter writing campaigns and live petitions right across Australia.

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